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Web Sites in Category Organizations
Boomer Esiason Foundation - A resource for those affected by this disease. Includes details about the organization, fund raising, events and a newsletter.
Canadian Cystic Fibrosis Foundation - Support and resources. Located in Toronto, Ontario.
CCFF Sudbury Chapter - Website of the Canadian Cystic Fibrosis Foundation Sudbury Chapter. Provides information on local events and information about Cystic Fibrosis.
Cochrane Cystic Fibrosis & Genetic Disorders Review Group - An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.
Cystic Fibrosis Foundation - Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Providing information about the disease, treatment options, clinical trials, research, and public policy.
Cystic Fibrosis Nurses: the International Specialist Group - Organization whose goals include setting and promoting high standards of nursing practice in the treatment of persons with Cystic Fibrosis.
Cystic Fibrosis Victoria Inc - Information about Cystic Fibrosis and the organisation, online chat room and message board.
Cystic Fibrosis Victoria Inc - Current information on Cystic Fibrosis, Cystic Fibrosis Victoria the organisation, online chat room, message board, '65 Roses Magazine', SSL Secure Online Shop and donations, events
Cystic Fibrosis Worldwide - International Association of Cystic Fibrosis Adults web site and International Cystic Fibrosis Mucoviscidosis Association.
Dream Holidays Charity - The Dream Holidays Charity helps families who have a child with Cystic Fibrosis, a genetic life threatening disease. We arrange holidays and wishes for these children with no cost to the family.
European Cystic Fibrosis Society - ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis
European Cystic Fibrosis Thematic Network - Creates a platform for scientists involved in fundamental CF research, for the more than 160 genetic diagnostic laboratories, for CF associations of families, patients and clinicians, legal experts and representatives of the industry.
I.C.F.M.A. - A not-for-profit organization for increasing cystic fibrosis awareness.
Lungs for Life Foundation - Provides financial assistance to cystic fibrosis and lung transplant patients.
Milan Foundation - Created in the name of Milan Brown who, at the age of 3 1/2, was diagnosed with Cystic Fibrosis. Includes a calendar, stories and poems about CF, how to donate, and the foundation's mission.
National Cystic Fibrosis Awareness Committee (NCFAC) - Helps to advance the public awareness of the genetic disease. Site includes mission statement and message board.
Reaching Out Foundation - Provides information on the programs provided by this foundation, a personal story of a person with CF who had a double lung transplant, general information on CF, and how you can donate.
The Victoria Foundation - Helps young adults with Cystic Fibrosis and assist parents in caring for their son or daughter at home, with the support of the Southampton CF adult team.
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