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Web Sites in Category Personal Pages
A Journey to Hydrocephalus - A parent's description of the diagnosis and ongoing adventure of her daughter's life with this disorder.
A Miracle Named Kerri - Personal story of Kerri's experiences with congenital hydrocephalus, shunting and a Craniectomy. Photo gallery and poems.
Andrew and Anna Fuller - Family pictures and stories by Andrew. Highlights about his little sister, Anna, a shunted hydrocephalic.
Ashley Nicole Schmit - Memorial tribute in memory of her sister who was born with hydrocephalus.
Darren, Barbara, and Callum Skinner - Features Callum, a boy living with hydrocephalus and slit ventricle syndrome.
Julia's Journey - Support and information for families who have children or loved ones with the disabling birth defect spina bifida and hydrocephalus.
Kori's Story - Personal information, photos, and updates about Kori, diagnosed with hydrocephalus and shunted at age two months.
Kristen's Hydrocephalus Links and Information - Kristen, a young woman living with congenital Hydrocephalus shares her journey to adulthood. Features links to medical resources, support groups, and HYCEPH-L, an e-mail discussion list.
Laura's Story with her Hydrocephalus - Features their little daughter, Laura. She was born premature, had IVH and hydrocephalus. Read her story and meet the family.
Mafalda's Homepage - Experiences with hydrocephalic daughter, information, photos and updates on progress. (English/Portuguese)
Melissa's Journey - A personal story of the hope and courage of a young woman's struggles against hydrocephalus and over 40 shunt revisions.
Rhianna Allen Memorial - A memorial to a special little girl and her dealings with premature birth, hydrocephalus, ventriculoperitoneal shunt(or VP shunts), and premature death.
Ryan's Hydrocephalus Page - Details the birth, development, and special needs of this special boy born in 1998 with hydrocephalus.
Sarah's Story - Accounts a parents' experiences with their daughter through diagnosis and treatments during her first two years.
Simon Allanach's Hydrocephalus - Simon's interests and information about hydrocephalus and personal experiences. Relates causes, treatments, complications, and procedures.
The Rafel's - Family photos, stories and updates. Sarah, oldest of three girls, was born premature and lives with hydrocephalus; shunted since one month old.
The Riccio Boys - Photos and family updates on the Riccio brothers. Family updates and hydrocephalus treatment information.
Tim and Hydrocephalus - Features their son who was born with hydrocephalus and oesophagusatresi.
VP Shunt Implant - It's a Lifetime Thing - A mother's advice and personal story of raising her daughter. Information and descriptions of diagnostic tests and treatments for hydrocephalus.
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Society > Disabled > Personal Pages
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